Understanding your role

When your doctor prescribes Ventavis, you will receive a welcome folder in the mail from PAH Pathways, and the specialty pharmacy will provide you with a starter kit. Read the materials that come with these two pieces. Watch the DVDs, and share them with your caregivers. This information will help you know what to expect while getting started on and taking Ventavis.

Return phone calls from PAH Pathways and your specialty pharmacy. They are working to support you and make certain you receive your medicine.

When contacted by your specialty pharmacy, schedule a meeting with the nurse educator to start your treatment. A nurse will come to your home or doctor’s office to get you started on Ventavis.

STAY

Set a goal:

• Setting a goal can help keep you motivated to stay on Ventavis—but it’s important to set realistic expectations. Some people may want to be able to walk around the block. Others may want to attend their child’s soccer match.
• Choose something that’s meaningful and realistically obtainable in your life.
• Continue to take Ventavis as directed by your doctor: Understand that treatment with Ventavis is different than taking a pill. Do your best to stay with your treatments and make Ventavis a part of your life.
• Keep in close contact with your healthcare support team.
• Call PAH Pathways with your questions about Ventavis or your I-neb AAD.
• Call Sure Steps nurse counselors for ongoing education and support.

STRIVE

• Track your progress and remind yourself what your goal is daily.
• Remember that in chronic diseases like PAH, not getting worse is considered an important treatment goal.
• Share your successes with your friends and loved ones.